We understand your concerns regarding confidentiality, and we want to go more in depth about the steps and policies in place to protect your confidentiality.
Before we can even begin a study, the Institutional Review Board (IRB) at MUSC must approve that our study meets the requirements of the Office for Human Research Protections of the U.S. Department of Health and Human Service. Once a study is approved, we begin our recruitment process with only pre-approved materials and study protocols. The IRB is made up of scientists and people from the community whose purpose is to make sure all the research we conduct is fair, low risk, and confidential.
To further protect participants' privacy, we do not link data to any identifying information, including participant names or contact information. We also have a Certificate of Confidentiality from the National Institutes of Health. This means that we cannot disclose or provide the name or any identifying information or data in any Federal, State, or local civil, criminal, administrative, legislative, or other proceeding, unless the participant consents to the disclosure. Any participation in one of our research studies will not be displayed on your medical records.
We make sure to go above and beyond to gain the trust of all participants and keep all information confidential and private.